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    The mother of a toddler with a rare condition called 'uncombable hair syndrome' says she will be sad when her daughter grows out of the condition.  Charlotte Davis, 28, from Great Blakenham in Suffolk, appeared on This Morning today to discuss her 18-month-old daughter Layla's condition, which has earned her nicknames like Boris Johnson and Albert Einstein. The rare syndrome, which is believed to affect around 100 people globally, is characterised by dry, frizzy hair that cannot be combed flat. Uncontrollable hair syndrome (UHS) develops in childhood, often between infancy and age three but can appear as late as 12. Charlotte Davis (pictured) appeared on This Morning today to discuss her daughter Layla (pictured, right) who has the ultra rare uncombable hair syndrome Toddler Layla was born with a headful of black hair, which fell out when she was around four-months-old, and was replaced with her trademark wild blonde locks Children who develop it tend to have light-coloured hair - and there are only around 100 cases in the world.  Those with the disorder are thought to grow out of it by...
    A BABY’S fluffy blonde locks make her look like Boris Johnson thanks to a rare condition shared with only 100 people in the world. Layla’s natural hair do led to mum Charlotte nicknaming her Boris because her wild mane sticks up at all angles. 3Layla Davis is among an estimated 100 people worldwide with uncombable hair syndromeCredit: JOHN McLELLAN 3The tot's locks make her look like Boris JohnsonCredit: AFP The 18-month-tot was born with Uncombable Hair Syndrome, a condition which causes dry, frizzy hair that cannot be combed flat. Mum Charlotte Davis, 28, told The Sun: “Sometimes we call her Boris because her hair is just uncontrollable, no matter what we do to it her hair will never go straight. “We have tried all sorts like blow-drying it, conditioning it, but we’ve just learned that this is just how it is.” The condition, also known as spun glass hair, is known to usually improve over time, normally by adolescence, for a reason unknown to scientists. MORE HEALTH NEWSKEY WARNING I felt a pain in my chest working out - doctors...
    CBBC star Chelsie Whibley died just hours before her family threw her a surprise birthday party - days after turning 30. Her heartbroken mum Pam has described her daughter as the “strongest person” and a “true inspiration”. 6Chelsie said that her wedding day was the happiest day of her life with husband GlynCredit: Solent 6Chelsie Whibley with Strictly winner Tom Chambers in a panto put on by the Starlight FoundationCredit: Solent Chelsie celebrated her 30th birthday three days before she died surrounded by her friends and family on April 2. The keen dancer suffered from cystic fibrosis, but “never let it stop her” from doing anything, after being diagnosed at 18 months.  Chelsie was initially told by doctors that she would only live until her teenage years, and making it to her 30th birthday was a huge milestone for her.  Her mum Pam Jones, 57, described her daughter as “determined” and “inspirational” and loved by her siblings Jorja, Mat and Carys. Speaking to the Sun she said: “Chelsie was the strongest person I’ve ever known. She always wanted to...
    WHEN little Ruby Smith was born, her mum noticed she would hold her breath, but put the strange behaviour down to wind or reflux. At just four-days old Ruby wouldn’t feed but kept holding her breath - with mum Claire Parsons noticing her daughter was turning blue. 4When little Ruby she would attempt to hold her breath and at first, doctors struggled to diagnose the youngsterCredit: Kennedy News and Media 4Her mum Claire knew something wasn't right and for the first year of Ruby's life the family were in and out of hospitalCredit: Kennedy News and Media 4Ruby started to have episodes every week and Ruby had to have genetic testing carried outCredit: Kennedy News and Media Claire, who lives in Bedford, said she took Ruby to A&E thinking her little girl was suffering with stomach pains. The mum-of-five told how when she arrived at hospital with Ruby, a doctor witnessed the new-born holding her breath. She was sent straight to the neonatal intensive care unit ward and on her first night in hospital, Ruby suffered a seizure. Doctors performed...
    A sexual abuse survivor has revealed how giving birth to her daughter triggered a rare form of PTSD that causes her to suffer panic attacks and sudden seizures - and even left her so depressed that she struggled with suicidal thoughts. Writer and educator, Lindsay Wolf, 37, from New Hampshire, was diagnosed with a rare condition called Complex Post-Traumatic Stress Disorder in 2018, a mental health condition diagnosed in people who have experienced traumatic events.  The diagnosis came three years after Lindsay gave birth to her daughter, Juniper, now six, and started experiencing debilitating symptoms out of the blue that only intensified over time. She suffered through involuntary muscle spasms that would last up to two hours at a time, panic attacks so severe she didn't believe she'd make it through them, and a constant inner atmosphere of shame, panic, and dread. Trauma: Mother-of-two Lindsay Wolf, 37, has revealed how giving birth to her daughter in 2015 triggered a rare form of post-traumatic stress disorder from sexual abuse she faced as a child Symptoms: Lindsay, from New Hampshire, initially thought...
    AN eight-year-old girl has been left nearly bald after stress caused her to pull her hair out. Little Amelia Mansie started pulling her eyelashes out a month into the first coronavirus lockdown and soon moved on to pulling out the hair on her head. 4Amelia Mansie had mid-length hair before the pandemic and her mum said her confidence has really been knockedCredit: Caters 4Mum Jemma said her little girl started pulling her hair out due to the stress of lockdownsCredit: Caters 4Jemma is trying to support her daughter and is paying for her to have private treatmentCredit: Caters Now back at school, Amelia has also had to deal with cruel bullies who have taunted her because of her condition. Amelia’s mum Jemma, 37, believes that the stress of the coronavirus lockdowns could have triggered Amelia's hair pulling condition known as Trichotillomania. Trichotillomania is where someone cannot resist the urge to pull out their hair in response to a stressful situation. Since pulling out all of her hair, Amelia has virtually no hair left apart from a few longer strands at...
    A MUM has spoken of her heartbreak after her one-year-old daughter was diagnosed with a rare condition that will gradually turn her body to 'stone'. Lexi Robins from Hertfordshire was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP), which is thought to affect just one in two million people. 3Little Lexi Robins was diagnosed with Fibrodysplasia Ossificans ProgressivaCredit: BPM The ultra-rare genetic disease gradually replaces connective tissues, tendons, ligaments and muscles into extraskeletal bone. After the earth-shattering news, her parents, Alex and Dave were met with the news that funding isn't available on the NHS. The couple decided to launch a petition to help dedicate funding for research into the rare condition to help other families. Since her recent diagnosis in June this year, the Robins family have raised a whopping £100,000. Most read in Health NewsTEARS FOR GABBY Funeral held in Blue Point as $20k bounty offered to catch Brian LaundrieSTORM WATCH Hurricane to 'become Category 4' as trackers say it could go toward East CoastMYSTERY GROWS Sleuths' new theory suggests Brian 'may have wrapped Gabby's body in tarp'ANCHOR 'AXED'...
    A mother has revealed how her eight-year-old daughter can only eat fruit and veg because having too much protein in her diet could leave her with irreversible brain damage. Lilly-Ann Woolliss, from Immingham in Lincolnshire, was born with phenylketonuria (PKU), a rare genetic disorder that severely limits how much protein the she can eat in a day.  PKU is a recessive condition in which the body cannot break down an amino acid found in protein that is known as phenylalanine.   Speaking about her daughter's condition, Carmen Wilkie, 43, explained: 'She's amazing, she just cracks on. She does have the odd day where she feels down and says "PKU sucks mum, why did it have to happen to me?" But she knows what she has to do and accepts it.'   Lilly-Ann Woolliss, 8, from Lincolnshire, has phenylketonuria (PKU), which means that she can only eat 4g of protein every day The youngster's diet has to be specially prepared, with her mother Caren cooking every meal from scratch and making meals for Lilly-Ann to take to school  The eight-year-old has to...
    A mother who is covered head-to-toe in more than 200 tumors due to a rare condition says she's found her confidence because her eight-year-old daughter who has the same condition 'doesn't care what people think'. Jamila Gordon, 33, from St Croix, US Virgin Islands, was diagnosed with neurofibromatosis when she was a baby when a lump formed on her stomach. Since, she has developed hundreds of tumors on every part of her body and says strangers stares on the street has knocked her confidence and 'made her anxious'.  But her daughter, Tatyana, eight, has helped her to find confidence again as despite people staring she 'doesn't care what anyone thinks'.   Jamila Gordon, 33, from St Croix, US Virgin Islands, was diagnosed with neurofibromatosis when she was a baby when a lump formed on her stomach Since, she has developed hundreds of tumors on every part of her body and says strangers stares on the street has knocked her confidence and 'made her anxious'. But her daughter, Tatyana, eight, has helped her to find confidence again as despite people...
    A TEENAGER has died after a rare condition left her with the body of a 100-year-old. Ashanti Smith had been living with the ultra rare premature ageing condition Hutchinson-Gilford Progeria Syndrome, which saw her age eight years for every year of her life. 4Ashanti Smith had been living with the ultra rare premature aging condition Hutchinson-Gilford Progeria Syndrome - when she turned 18 she was able to enjoy a cocktailCredit: Kennedy News Tragically, the 18-year-old died on July 17, telling her heartbroken mother that she had to “let me go”. Her mum, Phoebe Louise Smith said her daughter lived her life to the fullest and had refused to let the illness affect her “loud and beautiful spirit”. Despite her body being the equivalent of a 144-year-old when she passed away, Ashanti was still able to enjoy turning 18 in May with a night out, drinking her favourite cocktail. The teen died with her mum, dad Shaine Wickens, 33, and a family friend, Kayleigh Cartwright, 25, by her side. Distraught mum-of-four Phoebe who lives in West Sussex has now shared details...
    A teenager with 'Benjamin Button' disease that left her with the body of a 144-year-old has died weeks after her 18th birthday.  Ashanti Smith, from West Sussex, passed away on Saturday, July 17, after living with the ultra rare premature aging condition Hutchinson-Gilford Progeria Syndrome, which saw her age eight years for every year of her life. The teenager's mother Phoebe Louise Smith paid tribute to her 'brilliant and strong-willed' daughter, who refused to let the disease affect her 'loud and beautiful' spirit. Despite her body being the equivalent of a 144-year-old when she passed away, Ashanti was still able to enjoy turning 18 in May with a night out, drinking her favourite cocktail. The teen died with her mother, father Shaine Wickens, 33, and a family friend, Kayleigh Cartwright, 25, by her side - with some of her final words to her mum being 'you've got to let me go'. Ashanti Smith, from West Sussex, passed away on Saturday, July 17, after living with the ultra rare premature aging condition Hutchinson-Gilford Progeria Syndrome, which saw her age eight...
    A mother has revealed she spends at least two hours every day bathing her ten-month-old to treat a rare condition that causes her daughter's skin to grow up to 10 times faster than normal.  Carla Brown, 53, and her husband Paul, 55, from Chicago, adopted Hanna Rose, who was born with harlequin ichthyosis, a rare condition which causes thick plates to cover the body, in June 2020.   Within two weeks of returning home, Hanna was rushed to ICU with a bacterial infection and doctors warned Carla and Paul she wouldn't survive.  Despite the mortality rate for children with the condition being fifty percent for children under the age of one, Hanna defied the odds and returned to her family after 53 days in hospital.   But Carla said caring for her daughter at home can also be 'exhausting' at times, saying: 'She needs an hour-long bath twice per day and then has to be covered in skin care ointments every three hours day and night to sooth her dry, blistering skin.'  Carla Brown, 53, and husband Paul, 55, from Chicago,...
    The tearful daughter of a 73-year-old dementia sufferer whose shoulder was dislocated and arm fractured when cops violently arrested her over $13 in stolen groceries has called for her mother's alleged abusers to face criminal charges. Allisa Swartz told CBS This Morning on Tuesday that her mother's condition has worsened following the incident last June that has sent shockwaves across America since the bodycam footage surfaced last month.  'It's accelerated it. She is scared and anxious,' she said.   'I think they need to go to jail. Yes. They need to be held accountable.' Karen Garner was arrested by Loveland police officers back on June 26, 2020 when the elderly woman forgot to pay for a soda, a candy bar, a T-shirt, and wipe refills in a Walmart store in Colorado. Garner was stopped by staff and asked to return to the store where they recovered the unpaid merchandise but employees still contacted law enforcement. Bodycam footage made public last month shows the horrifying moment Officer Austin Hopp brutally dislocated her shoulder while arresting her.   Separate surveillance footage then surfaced showing Hopp and...
    A MUM has revealed how her daughter’s rare condition means that she only sleeps for one hour a night. Exhausted parents Robin Audette and Kirk Hisko are lucky to get between four to six hours sleep a night, but their energetic daughter Ever can survive on as little as an hour and a half. 7Robin Audette's daughter Ever can survive on almost no sleepCredit: Truly In fact their little girl has even been known to sleep at 20 minute intervals throughout a whole night.  The reason for Ever’s sporadic sleeping patterns? Angelman syndrome: a genetic and neurological disorder, which occurs in approximately 12-20,000 people. Ever first began experiencing problems the moment her parents brought her home from the hospital. Speaking to Truly, Robin, from Ontario Canada said: “After we brought her home from the hospital almost immediately she started having trouble. 7The tot can survive on as little as an hour's sleep a nightCredit: Truly 7Ever has Angelman syndrome, with one of the main symptoms being an ability to survive on very little sleepCredit: Truly “She was having trouble feeding,...
    An obese woman was forced to lose a whopping 325lbs in less than three years after being diagnosed with a rare brain disorder that required surgery - which was too risky for doctors to perform when she weighed 500lbs. Stay-at-home mother Evelyn Morales LaGrange, 36, from Jourdanton, Texas, was overweight throughout her childhood, but really started to gain weight rapidly after the birth of her daughter Rebecca, now 13, in 2007. In 2009, Evelyn was diagnosed with hypothyroidism, a condition in which the thyroid gland doesn't produce enough of the hormones which regulate metabolism. As a result, Evelyn found it impossible to avoid piling on weight and at her heaviest she weighed 500lbs and struggled to fit into a size 32 dress. Unhealthy: Stay-at-home mother Evelyn Morales LaGrange faced a decades-long struggle with her weight that eventually saw her tip the scales at 500lbs (pictured)  Change: Evelyn, 36, from Texas, was diagnosed with a brain condition in 2017 that required surgery - but doctors told he she needed to lose at least 300lbs to undergo it, which she did...
    A schoolgirl has been forced to give up her favorite hobby due to an allergy to water that is so severe even having a shower could kill her. Danielle McCraven, 12, from Haughton, Louisiana, breaks out in painful hives whenever she sweats or cries - and her allergy is so severe that having a hot shower or a soak in the bath could prove fatal. Danielle was diagnosed with aquagenic urticaria, a condition which is thought to affect less than 100 people worldwide, less than a year ago - before which she'd been a keen swimmer. She began to develop an itchy and painful rash whenever she came into contact with water - and now has to carry an EpiPen in case she goes into anaphylactic shock. Danielle McCraven, 12, from Haughton, Louisiana, pictured right with her mother Sari, is so allergic to water that even having a shower could kill her Poor Danielle breaks out in painful hives whenever she sweats or cries and has to stay indoors during summer in case her perspiration sparks a...
    Sign up for our COVID-19 newsletter to stay up-to-date on the latest coronavirus news throughout New York City A Queens man was arrested in Ridgewood for allegedly kidnapping his 7-year-old daughter from her home in Pennsylvania on Friday, Sept. 25. Juan Torres, 41, who turned himself in without incident to the 104th Precinct, has been charged with fugitive from justice by Queens District Attorney Melinda Katz. Torres faces additional kidnapping charges in Pennsylvania. On Friday, Torres allegedly snatched his daughter, Giselle Torres, from her Cheltenham Township, Pennsylvania home and took off toward New York, according to the NYPD. Soon after the kidnapping, police in Cheltenham issued a statewide Amber alert. Torres and his daughter arrived to Queens by Friday evening, according to police. He turned himself in to officers in the 104th Precinct around 8:30 p.m., the NYPD said. The 7-year-old’s condition was evaluated by EMS personnel at the precinct and again at Wyckoff Hospital, where she was found to be in good condition, cops said. Torres, who was remanded by a Queens judge, was also found to be...
    An Atlanta woman intentionally crashed her car into a vehicle carrying her 3-month-old daughter and the child’s father, killing the infant, police said. Titayanna Phillips, 21, is facing charges of felony murder and aggravated assault in a crash on Monday that killed her daughter, Khy’undra Henderson, and injured the girl’s father, 27-year-old Undra Henderson, Atlanta police said. An investigation revealed that Henderson, who was driving in a car with his daughter, was stopped at an intersection in northwest Atlanta at about 7 p.m. when Phillips deliberately struck Henderson’s vehicle, pushing it across a street, police said in a statement to The Post. “Investigators believe the mother struck the vehicle more than one time and believe the collision was intentional, based on information gathered at the scene,” police said. A neighbor who saw the crash said other witnesses then rushed to the car to rescue Henderson and his daughter, who were trapped inside their vehicle, WSB-TV reports. The wreckage that left Titayanna Phillips’ infant daughter dead11Alive “We were in the house when we heard a boom,” neighbor Taranjela Jones told the...
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