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LODI (CBS13) — A Lodi family is celebrating every single breath their baby takes. She was diagnosed with a rare medical condition at birth — so rare that only 95% of babies with the diagnosis do not make it to their first birthday.

Maggie just celebrated her first birthday about a month ago, but getting to that milestone was not easy.

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Sarah Clark, Maggie’s mother, knew her pregnancy would be challenging when doctors warned of complications with the baby. Some even encouraged her not to go through with it.

“It’s terrifying,” she said. “You don’t know how she’s going to…how her outcome is when she’s born.”

Maggie was diagnosed with trisomy 18 — or Edwards syndrome — which is a rare disease that could lead to congenital heart disease, developmental delays and breathing abnormalities.

“I just remember my knees buckling out and hitting the floor and my wife was already on the floor, and I was trying to figure out what’s wrong,” said Ralph Clark, Maggie’s father.

Newborns often have a 50% chance of surviving birth and only a 5% chance they’ll live to their first birthday.

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“It’s the worst thing you can hear, the absolute worst thing to hear as a parent,” Sarah said.

Sarah said faith is what has gotten her through everything. And the family needed it. Maggie struggled tremendously for the first three months, needing surgery to repair a hole in her heart.

“I think I’ve watched her almost die a handful of times,” Sarah said. “Those were very rough moments, but here we are.”

Maggie just celebrated her first birthday. The Clarks say doctors are now even using her as an example of babies who survive Edwards syndrome.  

“There are so many kiddos doing amazing things, and so to share Maggie, to give hope to those parents who are faced with this diagnosis, because you don’t know a thing until you’re faced with it,” Sarah said.

Maggie still has a long road ahead of her seeing several specialists including a cardiologist and pulmonologist. She’ll have physical therapy and occupational therapy, but Mom and Dad are just taking every day one step at a time.

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“Something as serious as Edwards or Pitau syndrome, every single breath is a blessing, every little achievement,” Ralph said.

News Source: cbslocal.com

Tags: sacramento stockton edwards syndrome lodi news you don’t know don’t know you don’t was diagnosed worst thing

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Ravens WR Tylan Wallace exits preseason opener vs. Titans with knee injury

Ravens wide receiver Tylan Wallace suffered a knee injury during the first quarter of Thursday night’s preseason opener against the Tennessee Titans at M&T Bank Stadium.

With 5:10 to go in the first quarter, Wallace received the handoff on an end-around before getting tackled for a 4-yard loss by Titans outside linebacker Rashad Weaver. Wallace was evaluated inside the team’s medical tent before heading into the locker room.

The Ravens said he is questionable to return.

Wallace, a 2021 fourth-round pick, has a history of knee injuries as he suffered a torn ACL in October 2019, forcing him to miss the final five games of his junior season at Oklahoma State.

Wallace appeared in 17 games last season, including one start, and had two catches for 23 yards. He played mostly on special teams, recording 278 snaps on that unit compared with 84 snaps on offense. He’s competing for snaps at wide receiver behind Rashod Bateman, Devin Duvernay and James Proche II, all of whom did not play Thursday as the Ravens sat most of their starters.

This story may be updated.

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